July 7, 2017 by STEVEN ERTELT
Charlie Gard’s life support will not be turned off for now as his parents and the hospital that is refusing to allow him to be treated or transferred and back to court. The new court appearance appears to revolve around an experimental treatment that other hospitals say could potentially help Charlie.
Charlie is the British boy suffering from a rare disease who a UK hospital is denying treatment or transfer to another hospital.
Great Ormond Street Hospital says “claims of new evidence” in the treatment of Charlie Gard have prompted it to seek a new hearing at the High Court. In a statement, the hospital said: “We have just met with Charlie’s parents to inform them of this decision and will continue to keep them fully appraised of the situation.
“Two international hospitals and their researchers have communicated to us as late as the last 24 hours that they have fresh evidence about their proposed experimental treatment. “And we believe, in common with Charlie’s parents, it is right to explore this evidence.”
“Great Ormond Street Hospital is giving the High Court the opportunity to objectively assess the claims of fresh evidence.
“It will be for the High Court to make its judgment on the facts.
“Our view has not changed. We believe it is right to seek the High Court’s view in light of the claimed new evidence.
Wesley Smith, a pro-life attorney who has been following the case, is skeptical of the good news.
The cynic in me worries that the hospital wants to discredit the proposed experimental treatment and/or the ability to move Charlie to a different hospital.
Bad Wesley! That would just be a PR move that would have nothing to do with acting in the “best interests” of Charlie. So let us assume the hospital is acting in good faith until we have reason to believe otherwise.
In any event, it almost surely means the boy’s life support will not be immediately removed.
It is truly heartening that the life of a dying baby can still move the world.
Meanwhile, Charlie’s parents have brought Terri Schiavo’s brother Bobby Schindler to London to help them fight for care for their son. Schindler has arrived in Britain to help them just as they are preparing to meet with executives from the hospital that is denying Charlie treatment that has won a legal battle to remove his life support over their objections.
Schindler spoke with LifeNews exclusively about their invitation. He, pro-life attorney Catherine Glenn Foster, President & CEO of Americans United for Life; and Rev. Patrick Mahoney, Director of the Christian Defense Coalition, arrived in London on Friday morning at the invitation of Charlie’s parents, Connie and Chris.
Schindler told LifeNews: “We are here by invitation from the family to come alongside them as they struggle to save their son, Charlie. The critical issue here is not a political one, but the simple notion that families know what is best for their loved ones.”
“Charlie’s situation is very reminiscent of my family’s battle to save my sister, Terri. Hopefully being here can help his parents, Connie and Charlie, deal with the day-to-day emotional roller coaster, as they fight for their son’s right to live,” Schindler added.
Schindler told LifeNews he is calling for officials in Great Britain to honor the wishes of Charlie’s parents and allow him to travel and receive the medical help he needs. He said he will be working with and alongside the family to facilitate their desire to obtain medical care for Charlie and oversee a campaign to ensure the family is not removed from the critical decisions being made concerning Charlie’s future and well-being.
Charlie is suffering from a rare disease, and his parents want to take him to the United States for an experimental treatment. His case gained international attention as his parents fought a series of court battles for their son, but ultimately lost. Recently, the European Court of Human Rights ruled against his parents’ appeal to take him to the U.S. A British court also ruled that his life support can be removed against his parents’ wishes.
In a statement Thursday night, New York Presbyterian Hospital and Columbia University Irving Medical Center said it had agreed to admit Gard.
“New-York Presbyterian Hospital and Columbia University Irving Medical Center have agreed to admit and evaluate Charlie, provided that arrangements are made to safely transfer him to our facility, legal hurdles are cleared, and we receive emergency approval from the FDA for an experimental treatment as appropriate,” the hospital said in a statement.
New York Presbyterian also said, as another option, it would ship the experimental drug to London’s Great Ormond Street Hospital, where Charlie is currently receiving care, if the FDA approves. The hospital said it would advise medical staff at Great Ormond on administering the treatment to the baby “if they are willing to do so.”
“Alternatively, if approved by the FDA, we will arrange shipment of the experimental drug to Great Ormond Street Hospital and advise their medical staff on administering it if they are willing to do so,” the statement read.
The situation is getting worse for the parents of Charlie Gard, the British boy suffering from a rare disease who a hospital is denying treatment or transfer to another hospital.
Now Charlie’s mother says the London-based hospital is keeping them in the dark and not inviting them to important meetings about Charlie’s care.
The Sun newspaper has more about this and a protest supporters of Charlie and his family waged today outside the home of British prime minister Theresa May, who has refused to allow Charlie to be transferred to another hospital where he could receive experimental treatment.
Connie said: “Doctors have kept us in the dark.
“We can only hope that various meetings they’ve been having to which we have not been invited are positive and that they will let us take Charlie to the US for treatment.”
President Donald Trump will grill British Prime Minister Theresa May in a private meeting today over her refusal to help Charlie Gard. May offered her sympathies to Charlie and his family on Wednesday, she also would not commit to intervening in his case.
Charlie is suffering from a rare disease, and his parents want to take him to the United States for an experimental treatment. His case gained international attention as his parents fought a series of court battles for their son, but ultimately lost. Last week, the European Court of Human Rights ruled against his parents’ appeal to take him to the U.S. A British court also ruled that his life support can be removed against his parents’ wishes.
While President Trump has offered to support Charlie’s Family in their attempt to bring him to the United States for an experimental treatment to combat the rare disease he faces, Prime Minister May has refused to help in any way.
The two leaders will meet one-on-one on Friday at the G20 summit in Hamburg and the Prime Minister’s team are readying a detailed briefing on the case in anticipation of questions from Mr Trump, the Daily Mail reported.
A Vatican hospital said it was ready and willing to care for British infant Charlie Gard but British officials refused to allow the little boy to leave the country. The Italian news outlet Zenit reported that leaders of the Bambino Jesus pediatric hospital in Rome, Italy said they are willing to care for Charlie if the courts will allow him to be transferred to their hospital. But Britain’s Foreign Minister Boris Johnson refused.
The president of the Bambino Gesu hospital, Mariella Enoc, told reporters she had asked GOSH if Charlie could be transferred but was informed he could not be moved.
A spokesman for the hospital said: “Great Ormond Street Hospital kindly told us that there is a legal problem about Charlie’s transfer to Bambino Gesu’s children’s hospital.
“This is sad news,” said Mariella Enoc, President Bambino Gesu, often referred to as the “Pope’s Hospital.”
Officials with the administration of President Donald Trump have spoken with the familyof Charlie Gard and say they are offering to help in any way possible.
But seeing how Gard and his family are in England and both British and European courts have rejected pleas from his parents to take him to the United States for experimental treatment, the ability to help is probably a tall order.
Charlie Gard’s mother is still defiant in the face of a court decision allowing a hospital to revoke life support from her son even though she and Charlie’s father do not want it removed. Charlie’s parents are desperately trying to get him to the United States for an experimental procedure that could save his life as he battles a rare disease.
Charlie is the little boy who is dealing with a rare disease and whose doctors are preparing to remove his life support over his parents objections.
Charlie’s parents have exhausted their legal options as court after court has denied them the ability to provide proper life-saving care and medical treatment for their son. They have been prevented from taking Charlie from Britain to the United States for an experimental treatment that could save his life. Gard, the 10-month-old baby in the United Kingdom who is afflicted with a rare mitochondrial disease, will have his life support withdrawn after his parents lost their appeal to transport their son to the United States for an experimental treatment.
Charlie’s mother Connie Yates sent out a response on social media following a tweet from president Donald Trump saying that he would help Charlie if possible.
Yates thanked both President Trump as well as Pope Francis who spoke up over the weekend on Charlie’s behalf. Yates added: “If he’s still fighting, we’re still fighting.”
Leading pro-life organizations and disability rights campaigners have been fighting for Charlie speaking out on social media on his behalf. Now President Donald Trump has joined that chorus.
Trump’s support came after Pope Francis weighed in on their side — offering his prayers for Gard, and asking that his parents’ wishes be respected.
“The Holy Father follows with affection and emotion the story of Charlie Gard and expresses his own closeness to his parents,” read a July 2 statement issued by Vatican spokesman Greg Burke.
“He prays for them, wishing that their desire to accompany and care for their own child to the end will be respected.”
Pope Francis also used his Twitter account to send a clear pro-life message to the world.
When his parents asked to take their son home to die, their request was denied. Gard’s life support machines were to be turned off Friday, but the courts allowed the parents to have more time with their child before his death.
“Baby Charlie,” as he came to be known, cannot breathe on his own, has seizures, and suffered severe brain damage as a result of his disease. In March, doctors told Charlie’s parents that they did not believe that they could do anything further to treat their son, and recommended that they withdraw life support. Despite the grim diagnosis, Charlie’s parents raised over $1 million to move him to the U.S. for treatment, but the European Court of Human Rights ruled against them on Wednesday and will not permit them to treat their son.
The court said that they did not believe that the experimental treatment in the U.S. would benefit Charlie, and that it would cause him “significant harm.”
“The domestic courts had concluded, on the basis of extensive, high-quality expert evidence, that it was most likely Charlie was being exposed to continued pain, suffering and distress and that undergoing experimental treatment with no prospects of success would offer no benefit, and continue to cause him significant harm.”
On Facebook, Charlie’s parents said that they were “heartbroken” and that they were aghast that they were not permitted to choose when or where their son would die. Previously, they have said that they would like their son to pass away at home, not in a hospital. They are not permitted to take him home, and they say that the hospital is “rushing” to turn off the ventilator.
Charlie entered Great Ormond Street Hospital in London in October and was diagnosed as suffering from a form of mitochondrial disease that causes progressive muscle weakness and brain damage. Subsequently his parents discovered that 18 people in the United States had been treated with an oral medication of naturally occurring compounds to remedy this rare condition. Reports have not identified the doctor who initially agreed to treat Charlie, but it was noted that his parents were aware that no cure was promised.
The main argument offered by the hospital to countermand parental authority was to protect Charlie’s “best interests.” However, attorneys for Charlie’s parents argued that the hospital was basically holding Charlie hostage, violating several articles under the European Convention on Human Rights, including the rights to life, liberty and family privacy.
Terri Schiavo’s brother Bobby Schindler has weighed in on the situation.
“Charlie Gard’s life is more valuable than British and European bureaucrats realize,” explains Bobby Schindler, President of the Terri Schiavo Life & Hope Network.
“The central issue of the Charlie Gard struggle,” continues Bobby Schindler, “is not about rationing, limited resources, or even life support. At issue is whether universal healthcare means that bureaucrats and judges will determine appropriate treatment, or whether parents like Charlie’s with the energy, finances, and physicians to care for their child will be allowed to do so.”
The Terri Schiavo Life & Hope Network has served more than 2,500 medically vulnerable patients and families. The Network been instrumental in similar parental rights cases, particularly the case of Jahi McMath who is now home with her family, and baby Joseph Maraachli who was ultimately allowed to die peacefully in his sleep from natural causes at home, surrounded by loved ones.
Schindler added: “We don’t need judges posing as anguished moral philosophers, weighing what makes a life worth living. We simply need them to rule on whether mothers and fathers have an inalienable right to care for their own children. Are we better off in a society where government officials are encouraged literally to separate loved ones from each other? Is it better for Charlie Gard to live and die at home with his family, or in a state institution?”
Charlie Gard’s Mother: “This Has Been Absolute Hell. We Have No Say in His Life Whatsoever”
July 7, 2017 by MICAIAH BILGER
Charlie Gard’s mother spoke out on British TV this week about her son’s condition and the helplessness she feels as a parent.
Charlie is suffering from a rare mitochondrial disease, and his parents want to take him to the United States for an experimental treatment. His case gained international attention as his parents fought a series of court battles for their son, but ultimately lost. Last week, the European Court of Human Rights ruled against his parents’ appeal to take him to the U.S. A British court also ruled that his life support can be removed against his parents’ wishes.
Connie Yates, Charlie’s mother, told Good Morning Britain this week that she does not want her son to suffer; she just wants him to have a chance at life. She said it has been “absolute living hell” to wait and wonder when the hospital might end his life support.
“He’s our own flesh and blood and we don’t even have a say in his life whatsoever,” Yates said. “We are not bad parents, we are there for him all the time, we are completely devoted to him and he’s not in pain and suffering, and I promise everyone I would not sit there and watch my son in pain and suffering, I couldn’t do it.”
Yates said she has done extensive research about her son’s condition. She said she found an experimental drug in the United States that is being used to treat children with mitochondrial diseases, and they hope Charlie could benefit from it.
She said a U.S. hospital agreed to treat Charlie if they could get him there, and they raised more than $1 million for his treatment. However, the courts have denied them their right to take Charlie to a new hospital.
“There is potential for him to be a completely normal boy but we don’t know because we just don’t know until we try,” Yates told the TV show. “I’ve heard from doctors that there’s around a 10% chance of this working for Charlie so I think that’s a good enough chance to take.”
Later, she added: “I don’t understand it, euthanasia is illegal, suicide is illegal. How is this legal? It’s in his best interests to have a chance at life.”
She also said the hospital put off removing Charlie’s life support after Pope Francis and U.S. President Donald Trump became involved.
“It does give us a hope definitely, because there was no hope left. Charlie was going to die on Friday and, you saw the video we did, we were absolutely devastated,” Yates said. “And then it was going to be on the Monday instead but I think the White House got involved over the weekend and then that changed things.”
Prayers and support for Charlie have been flooding in from across the world, including from Pope Francis and U.S. President Donald Trump. Hundreds of people protested the court ruling in London over the weekend, and another protest is planned for this week.
In October, Charlie entered Great Ormond Street Hospital in London and was diagnosed with a form of mitochondrial disease that causes progressive muscle weakness and brain damage. His parents discovered that 18 people in the United States have been treated with an experimental medication to remedy the rare condition. Reports have not identified the doctor who agreed to treat Charlie, but it was noted that his parents were aware that no cure was promised.
In March, however, Charlie’s doctors recommended that they remove his life support, saying there was nothing more they could do to help him. The little boy suffered brain damage from his disease and cannot breathe on his own.
But Charlie’s parents took the matter to court, and eventually appealed their case to the European Court of Human Rights. Last week, the high court ruled against them and will not permit them to seek alternative treatments for their son, according to The Guardian.
The judges said they did not think Charlie would benefit from the experimental treatment, and it could cause him greater pain and suffering.
On Monday, Charlie’s mother posted a message on Twitter saying that they have not completely given up.
“If he’s still fighting, we’re still fighting!!!” she wrote.